Thank you for all your comments here and on Facebook. We knew Tony had matured and blossomed at school, but reading everyone's comments tells us how much.
I don't know if this will help you in your grieving process or not, but I want to share something with you.
His Mom and I are doing fine with his death. Watching his abilities run downhill, knowing the almost certain end result of this kind of tumor, staying optimistic to help him stay optimistic, and watching him suffer the last few days was the hardest thing we have ever done.
He made it much easier for us when he let us know, on Tuesday, that he knew he was probably going to die, and that he was okay with it. Then we were free to talk to him about where he was going, to tell him that we were okay with it -- don't worry about us -- we are here to take care of you, etc.
In short, I ask you not to worry about us...we are probably feeling much much better than you are at this point. Think about all the good memories you have of Tony. Look up pictures of him on Facebook...I think you will find some of them even make you laugh.