Thank you for keeping up with Tony's status as he was battling cancer.

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Tuesday, March 30, 2010

Based on the MRI, the radiologist thinks there is growth in the tumor. The doctors disagree, and see no change. Since Tony says there is a change in the way his arm and leg feel, they are going to put him back on steroids. If the problem gets better, the problem is brain swelling from the cancer. If the problem does not get better, the problem is caused by the cancer itself.

At this point, they don't expect to see much if any change in the tumor. It could be 8 weeks from treatment start before we see any change.

He has been cleared to travel, so tomorrow he is going to Tulsa for to see friends. Of course, Mom and Dad will be along too.

Monday, March 29, 2010

He is scheduled for an MRI tonight at 6:30 CST with a follow-up doctor appointment tomorrow. This is because of his reported additional loss of arm function.
His arm has lost another degree of feeling, so he has a call into the doctor to talk about it. He learned over the weekend that he can't throw a football with his right arm anymore. He said he might start learning to throw left-handed.

Saturday, March 27, 2010

He felt yesterday like his arm might act up, so he took his medicine, and nothing happened. Today he is with all his friends that came down from Arkansas to see him, and having a good time. He has some really great friends.

Thursday, March 25, 2010

No more episodes today or yesterday. His mood is really good. They have upped one of his anti-seizure medications. He is looking forward to the weekend. Several of his college friends are coming down to Houston for the weekend.

Tuesday, March 23, 2010

He had a good day today. No episodes. He feels about the same as when we came down here a week ago, so things seem to be holding steady. The medicine isn't making him feel bad, so he enjoys the days.

Monday, March 22, 2010

He had a numbness in his arm Sunday morning during worship. He took his medicine right after worship and took a nap which cleared it up. Still, we want these things to stop - not continue.

Today seemed to be okay. He got to spend the day with his sister, and catch up with a friend from many years ago.

Friday, March 19, 2010

He had a good day. His appetite seems to have picked up from the four doses of steroids, but he is done with them for now. He did not have an arm episode today which breaks the string of three in a row spaced 48 hours apart. Hopefully the medications are starting to take hold.
He seems to be doing fine. No changes in the way his arm and leg feel, but no improvement yet either.

Thursday, March 18, 2010

He woke up feeling good this morning. His skin is starting to dry out which is 100% expected on one of the new medicines. He just has to apply lotion, and drink lots of liquids.

We called and left a message for the doctor last night since he had an arm episode. We haven't heard back yet ths morning.

Wednesday, March 17, 2010

He had another arm episode tonight. It came on suddenly instead of gradually as it has last two times. The medication he has been given for this knocked it down, but it doesn't seem like he should be having these at this point.
The bleeding has stopped and appears to have been a minor transitory thing. He feels pretty good, and it back on his computer updating facebook, etc.

Tuesday, March 16, 2010

He went back to the hospital today with some blood in stools. Digestive tract bleeding is listed as a rare but serious side effect of the medicines. The doctor is not concerned at this point. We have been instructed to keep an eye on it. If it gets worse go to the ER. If it continues too long, go to the ER. We are expecting it is just a hemorrhoid.

He is moved into unit 151 at Lakeview RV Resort in Houston, TX.

Monday, March 15, 2010

He had his first monthly infusion today, and took his first new daily medications. He isn't feeling any ill effects yet except for a little stomach upset, and he has some medicine that should help with that.

Tomorrow, he moves into the RV park where he was last long stay in Houston. We have it tentatively reserved for a month or two this time.

Sunday, March 14, 2010

Tomorrow starts the fourth different treatment regimen. He gets his first monthly infusion tomorrow morning at 9:00 CST. He went to Life Group tonight with friends and had a good time.
He has an appointment at 8:30 AM Monday in Houston to meet with the doctor about starting new treatments. This will be the fourth different type of treatment he has tried. We think the treatment will also start tomorrow, but don't know for sure.

He had to take medicine last night for his arm...the first time he has had to do that in weeks. His right triceps was cramping.

He went to worship this AM at West Houston, and saw the Brinkley family.

His spirits seem to be pretty good. I think there are some concerns that he keeps just beneath the surface, but he is engaged and ready to tackle this next treatment regimen.

Friday, March 12, 2010

The cancer is back a little

They found some white spots that are growing back next to where the tumor had been before. There is some swelling around them, and it coincides with some loss of sensitivity in his right leg. The doctors can move it in certain ways, and he can't tell what they are doing if his eyes are closed.

He has signed up for another experimental trial since the normal treatments are not working. We will find out Monday, hopefully, whether or not he is accepted. The trial is a combination of three medicines that have each shown promise individually, and are being tested together (Accutane, Carboplatin, Vorinostat). The trial has made it to the point where they have backed off on dosage because it was making people too sick. His dosage should be just a notch short of being too sick.

The trial requires he be in Houston a day or two every 4 weeks, so we have made reservations for him to stay in Houston for the next month or so. We will have to make up the rest as we go along.

Obviously, he is disappointed with the results, but he still feels good and his spirits are good. We have a plan to move forward, and he is generally okay so long as we have a plan.

Prayers please.

Thursday, March 11, 2010

He gave blood samples today, and took an MRI. We will get the results Friday (tomorrow).

Wednesday, March 10, 2010

He is feeling great, and ready for blood tests and MRI tomorrow. We get to hear the results Friday morning...let's pray for something very good.

Sunday, March 7, 2010

He has felt pretty good this whole cycle, but is tired. He has felt good enough to go to church most of the time. We should find out late next week how things are going inside.

Monday, March 1, 2010

The chemo is starting to wear him down half way through this two-week treatment. He still feels pretty good, but the side effects make him tired and needing to stay near a bathroom.