Based on the MRI, the radiologist thinks there is growth in the tumor. The doctors disagree, and see no change. Since Tony says there is a change in the way his arm and leg feel, they are going to put him back on steroids. If the problem gets better, the problem is brain swelling from the cancer. If the problem does not get better, the problem is caused by the cancer itself.
At this point, they don't expect to see much if any change in the tumor. It could be 8 weeks from treatment start before we see any change.
He has been cleared to travel, so tomorrow he is going to Tulsa for to see friends. Of course, Mom and Dad will be along too.
Tuesday, March 30, 2010
Monday, March 29, 2010
Saturday, March 27, 2010
Thursday, March 25, 2010
Tuesday, March 23, 2010
Monday, March 22, 2010
He had a numbness in his arm Sunday morning during worship. He took his medicine right after worship and took a nap which cleared it up. Still, we want these things to stop - not continue.
Today seemed to be okay. He got to spend the day with his sister, and catch up with a friend from many years ago.
Today seemed to be okay. He got to spend the day with his sister, and catch up with a friend from many years ago.
Friday, March 19, 2010
Thursday, March 18, 2010
Wednesday, March 17, 2010
Tuesday, March 16, 2010
He went back to the hospital today with some blood in stools. Digestive tract bleeding is listed as a rare but serious side effect of the medicines. The doctor is not concerned at this point. We have been instructed to keep an eye on it. If it gets worse go to the ER. If it continues too long, go to the ER. We are expecting it is just a hemorrhoid.
He is moved into unit 151 at Lakeview RV Resort in Houston, TX.
He is moved into unit 151 at Lakeview RV Resort in Houston, TX.
Monday, March 15, 2010
He had his first monthly infusion today, and took his first new daily medications. He isn't feeling any ill effects yet except for a little stomach upset, and he has some medicine that should help with that.
Tomorrow, he moves into the RV park where he was last long stay in Houston. We have it tentatively reserved for a month or two this time.
Tomorrow, he moves into the RV park where he was last long stay in Houston. We have it tentatively reserved for a month or two this time.
Sunday, March 14, 2010
He has an appointment at 8:30 AM Monday in Houston to meet with the doctor about starting new treatments. This will be the fourth different type of treatment he has tried. We think the treatment will also start tomorrow, but don't know for sure.
He had to take medicine last night for his arm...the first time he has had to do that in weeks. His right triceps was cramping.
He went to worship this AM at West Houston, and saw the Brinkley family.
His spirits seem to be pretty good. I think there are some concerns that he keeps just beneath the surface, but he is engaged and ready to tackle this next treatment regimen.
He had to take medicine last night for his arm...the first time he has had to do that in weeks. His right triceps was cramping.
He went to worship this AM at West Houston, and saw the Brinkley family.
His spirits seem to be pretty good. I think there are some concerns that he keeps just beneath the surface, but he is engaged and ready to tackle this next treatment regimen.
Friday, March 12, 2010
The cancer is back a little
They found some white spots that are growing back next to where the tumor had been before. There is some swelling around them, and it coincides with some loss of sensitivity in his right leg. The doctors can move it in certain ways, and he can't tell what they are doing if his eyes are closed.
He has signed up for another experimental trial since the normal treatments are not working. We will find out Monday, hopefully, whether or not he is accepted. The trial is a combination of three medicines that have each shown promise individually, and are being tested together (Accutane, Carboplatin, Vorinostat). The trial has made it to the point where they have backed off on dosage because it was making people too sick. His dosage should be just a notch short of being too sick.
The trial requires he be in Houston a day or two every 4 weeks, so we have made reservations for him to stay in Houston for the next month or so. We will have to make up the rest as we go along.
Obviously, he is disappointed with the results, but he still feels good and his spirits are good. We have a plan to move forward, and he is generally okay so long as we have a plan.
Prayers please.
He has signed up for another experimental trial since the normal treatments are not working. We will find out Monday, hopefully, whether or not he is accepted. The trial is a combination of three medicines that have each shown promise individually, and are being tested together (Accutane, Carboplatin, Vorinostat). The trial has made it to the point where they have backed off on dosage because it was making people too sick. His dosage should be just a notch short of being too sick.
The trial requires he be in Houston a day or two every 4 weeks, so we have made reservations for him to stay in Houston for the next month or so. We will have to make up the rest as we go along.
Obviously, he is disappointed with the results, but he still feels good and his spirits are good. We have a plan to move forward, and he is generally okay so long as we have a plan.
Prayers please.
Thursday, March 11, 2010
Wednesday, March 10, 2010
Sunday, March 7, 2010
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