His hand and arm still act up if he tries to do anything much beyond reading a book, operating a TV remote, eating, etc. Anything done standing up or requiring larger or more forceful movements causes problems.

The doctor is going to prescribe a new anti-seizure medicine in hopes that Tony can move about more and not have his arm and hand act up. At first, the new medicine will be more sedative than what he is on, but his body should get used to it.

He felt good until his shower today. The act of washing caused his right hand to involuntarily close tightly. Only through conscious effort can he open it; as soon as he relaxes, it forms a fist.

He took his 'reset' pill this morning, and now feels better than he has in many many days. He acts like he feels pretty good, but he isn't ready to get out and go to worship. He is getting more coordinated with his left hand, but his right hand still is not of much use, and walking with a less-than-controlled right leg is a bit of a challenge too.

The increased medication has helped his arm feel a little better, but just a little. He is up and watching TV, but is still tired.

He got up early today and is laying on the couch watching TV. This feels good to me...at least he feels good enough to be out of bed.

He spent several hours up and watching TV instead of resting in bed. He acts like he feels better.

He had a dizzy spell today, but it is probably a side effect of the medications. The doctor increased one of his anti-seizure medications today, and one of the main side effects is dizziness. However; Tony said his arm didn't feel as if it were on the verge of a seizure today.

Thanks for reading and for your interest in Tony.

As of this morning, he hadn't had any new seizures, but he did take a reset pill last night shortly after laying down to sleep. He was up for a while yesterday to watch some Rugby on TV. Today he has a doctor appointment in Anchorage, but it is just to catch the doctor up on what is going on since the doctor will be administering his monthy infusion this time (instead of going to Houston for it).

He stayed home from church today, but didn't have any seizures. He did take his 'reset' pill about midnight last night, and felt all day today like he could have a seizure, but he did not. He got up long enough to come in the living room and watch some TV with me, but otherwise stayed in bed.

When he is laying down, his arm regains some of its feeling and function, but he loses it when he gets up and about.

He didn't have any seizures today. He got out of bed for lunch and for a few bathroom trips, but rested in bed otherwise.

He has had four seizures today ranging from moderate to mild. The doctor has said the seizures don't hurt anything and aren't causing any damage; however, he is still very discouraged and frustrated. He wants to be able to walk and go places without undue effort, and he feels he can't. He spends lots of time reading in bed. He hasn't been playing his video games lately. I assume it is because he can't play well since his right hand has minimal control.

He started some new chemo medicine today. It is a monthly infusion along with two kinds of pills every day with no time off. Supposedly, these pills won't be hard on him.

Your prayers are definitely wanted and needed.

He is back in Alaska and feels much better being home.

He has lost most use of his right arm. He can use it to push up from a chair, pull on a door, and large movements like that; but fine movements like writing, holding a spoon, pouring, etc are not working. Walking has become more difficult too -- requiring more concentration.

He seems to do better after a bit of exercise (walking, etc), but doesn't like to exercise...probably because it feels awkward.

The tumor has grown some, but the doctor said it is not growing fast. The new regimen will be two oral medications (I don't know what kind yet) and the monthly carboplatin infusion. The cool part is he isn't scheduled to go back to Houston until August...he had been scheduled to go back in mid-July. He will need an MRI in July, but we can schedule that in Anchorage.

Lord willing, he will be back in Alaska tonight.

The doctor is taking him off the current chemo treatment. The treatment is going to change to something else, but we don't know what yet. We won't know details until tomorrow when he sees the doctor again, but the MRI didn't show the progress expected by this point. It seems to show that the tumor or the swelling or something has grown some...not a lot but some. We are not surprised based on what we have seen in the last few weeks.

Please pray for the doctor to find a treatment that will work for Tony.

The doctor has decided to get an MRI. This wasn't part of the planned visit, so it may delay coming home. May change a lot of things.

Tomorrow, he will have blood work, a doctor visit in Houston, and (if all goes well) the start of his next 4-weeks worth of chemo treatments.

He is on his way to Houston for his regular checkup and treatment. No MRI is scheduled this time, so we may not have any definitive progress to report. The stress of getting ready to travel made is symptoms increase, but this temporary increase happened last trip too.

His physical therapy appointment bore good news. He has improved in every category but coordination. His therapist used to work in a neurologist's office, and said that his recent seizure is not uncommon when starting physical therapy. Therapy, after months of inactivity, is quite a stress on the body, and this stress causes his body to use up his anti-seizure medicine more quickly. The doctor might need to adjust his dosage accordingly.

Today he enjoyed a DVD full of "The Big Bang Theory" television episodes.

He went to worship tonight, but left during the second song when his hand started to tremble. He took his reset pill, and is okay. He is talkative which means he is feeling good.

Since going on the steroids, he has regained much of the proprioception (the ability to know what your body is doing without looking at it) in his arm. He can tell where his arm is better than he has been able to in weeks.

Let's pray that he can maintain and gain on this without needing steroids.

The doctor prescribed some steroids, and he felt better within a couple of hours of taking them. He doesn't seem to have recovered any more function, but he feels better.

He feels about the same today as yesterday.

His arm and leg started twitching tonight, so he took his reset pill to head off anything worse. He has commented that his arm and leg are not back to where they were before yesterday's events. He did enjoy watching sports on TV today. He felt good up until the twitching started tonight.

All-in-all, things don't seem to be going in the right direction.

He feels better today after his Ativan and a good night's sleep. The doctors don't seem concerned with yesterday's events. They just said to keep them informed.

Continued prayers wouldn't hurt...

The doctor told him to take one of his 'reset' pills (Ativan). If a seizure happens again tonight, he can go to the hospital, and they will give him a stronger IV version of it.

He just had a seizure of his full right side. It lasted a couple of minutes, but he says he feels like it could start again. We have called the doctor's after-hours number.

He says his arm, hand, leg, and foot are all much worse today. It started this afternoon without any event or anything obvious to initiate the change. He is suddenly feeling only about 40% control, but he had been around 60-70% lately.

This change has left him feeling down a bit. Me too for that matter.

We have notified his nurse at MD Anderson, and we will see what she has to say tomorrow.

Prayers please

He doesn't feel well today, so won't be going to worship this morning.

Today, he reported that he believes his right leg is gradually getting worse. He said that after every episode, it doesn't quite come back up to where it was before. He tripped on the stairs today carrying a plate of food. It takes visual concentration to carry without spilling and visual concentration to walk on the stairs...he can't watch the plate and his foot at the same time.

Prayers please.

Another day without any arm episodes. Thanks for your prayers.

Yesterday, he had no arm episodes or iffy feelings or anything like that. It was kind of nice after four days in a row of having something happen. It may be temperature-related. Yesterday was the first fairly cool day in awhile.